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What You Should Know About National Spinal Muscular Atrophy Awareness Month

Homecare in Westport CT: August is National Spinal Muscular Atrophy Awareness Month

Homecare in Westport CT: August is National Spinal Muscular Atrophy Awareness Month

As a family caregiver, one of the most important things that you can do is educate yourself about the challenges that your parent faces and what you can do to help protect your parent and guard them against the potentially devastating consequences associated with them.


August is National Spinal Muscular Atrophy Awareness Month.

If your aging parent suffers from this condition, it is important that you are not only aware of it and understand it, but that you are there for them to help them manage their condition in the way that is right for them.

 

Some things that you should know about National Spinal Muscular Atrophy Awareness Month include:

Spinal muscular atrophy is a genetic disease, meaning that its development relates to a person’s specific genes

This condition impacts the nervous system, specifically impacting the portion of this system that influences voluntary movement

The term “spinal” refers to the fact that the majority of nerve cells that control muscle movements are located within the spine

When a person suffers from this condition, the nerve cells are not able to send signals to the muscles, restricting the person’s ability to move their muscles. This is why the name of the disease includes the term “muscular”

• Over time, muscles that are not used or moved will get smaller, or “atrophy”

• There are several different forms of spinal muscular atrophy, each of which has its own set of symptoms and challenges, as well as specific age of onset and projected progression

• Types 3 and 4 of spinal muscular atrophy are milder than types 1 and 2, which have an onset of infancy or very early childhood and is a leading cause of death for very young children. Type 3 allows for life into adulthood, while type 4 has an onset of adulthood. Both can allow for the person to still maintain functioning such as having a career and participating in activities and hobbies

• Respiratory system muscle weakness is a particular risk for people with SMA, and often comes into play when a person must undergo a medical procedure that involves anesthesia

 

How can a home care services provider help?

If you have been considering ways that you would be able to enhance your parent’s quality of life and support an ongoing lifestyle of independence and fulfillment, now may be the ideal time for you to consider starting elder care for them. An elderly home care services provider can be there with your aging parent on a fully customized schedule to ensure that they get everything that they need to remain happy, healthy, comfortable, and safe throughout their later years.

The highly personalized nature of these services enables the care provider to address your parent’s individual needs, challenges, and limitations in the way that is right for them by respecting their preferences, goals, and opinions. This means that they can handle their daily personal care tasks, support good lifestyle choices, keep them active and engaged, and even offer reminders to help them stay compliant with their medications and treatments so that they can get the most benefit from them.

If you or an aging loved-one are considering Contact Ushomecare in Westport, CT, please contact the caring staff at Sovereign Home Health today.
Call today (203) 642-1924

 

Sources:

August is Spinal Muscular Atrophy Awareness Month


https://www.mda.org/sites/default/files/publications/Facts_SMA_P-181.pdf

Syd Kain

Sovereign Home Health provides in-home care that makes a difference in the lives of seniors and other adults. Our clients and their families trust their care to us. Whether part-time companionship services or 24/7 live-in home care, we provide the support and friendship that improves lives and enables independent living at home.

Sovereign Home Health is focused on caring for our clients throughout Connecticut.With two locations and services ranging from our personal care and companion care services to our 24/7 Never Alone Care, our specially trained and certified in-home caregivers can provide you with the care and freedom you or your loved one deserve.

Each of our clients has different care needs, and Sovereign Home Health provides a range of services that can be customized to fit their unique, individual client needs. To learn more about Sovereign Home Health or to set up a free comprehensive consultation, contact us today.